The theme of Friday’s post for the 3rd Annual Diabetes Blog Week is “What They Should Know” as a way to encourage writers to express at least one thing they think that others not struggling in some way with diabetes should know.
There are people in my life, in Madeline’s life, who—through their subtle reactions, passive-aggressive “questions,” and sideways comments—believe that I overreact when it comes to managing T1. I like to think that their belief stems from a lack of knowledge, rather than a lack of understanding.
It is true that I am a diligent observer, keeping an eye on Madeline wherever she goes. This is not me hovering. It is true that I make painstaking efforts to plan ahead, making sure we are as prepared as possible to manage T1 no matter the circumstance or setting. This is not me being difficult. It is true that, because of her age and her stage in learning how to manage her disease, I don’t let Madeline “just go” places without me or her father. This is not me being overbearing. It is true that I measure her food, monitor her activity, and manage her access to certain carbs. I don’t need to lighten up.
I do these things because T1 is a life-threatening disease. Misjudgments, miscalculations and indifference will result in Madeline becoming seriously ill—we’re talking ICU-sick here. The simple fact is that T1 can kill my daughter, and I’m doing whatever I can to prevent that from happening. Please stop judging me, and try to understand.
That’s what they should know.