I am… a mother of 3 spectacular children. A wife of an architect extraordinaire. A school psychologist and a clinical social worker. A (wishful) writer. A protector of family and spirit. A worshipper of the natural world. A seeker of knowledge. A lover of the arts. An introvert. A silver-lining kind of girl.
I love your blogs! I came across them while searching for info regarding me completely forgetting to give my daughter her evening dose of long acting insulin. ( I could kick myself) This is so overwhelming…..but I know I’m not alone. There are plenty of others dealing with the same issues and feelings as our family….as I read in your blogs. Thank you….it helps.
Shannon King
Mother of Kylie 10 (my T1 baby) and Kenny 16
You are so welcome. I write mainly to help myself cope with and make sense of this experience, but I’m glad it’s helpful to others.
I am so glad I came across your blog. My 2 1/2 yo daughter was diagnosed with Type 1 in December. Before the diagnosis, she was seeing an OT for “moderate sensory processing” issues. After diagnosis, some of her sensory issues have gotten better. However, I am seeing new ones emerge. It is so difficult to tell if these “issues” are diabetes relates, sensory related, the fact that she’s 2 1/2, or the fact that she’s a girl 🙂 I just wish I could tease out what’s what!
Beatrice, I share your frustration. We’re going through big sensory issues right now (they seem to ebb and flow) and I’m thinking of a blog post on that as that part of our experience is something I have not blogged much about– except where it interfaces with diabetes. As if things weren’t complicated enough for our kids…
your SPD post disappeared! i think we have a lot of those issues, but had OCD therapy. SPD wasn’t mentioned. i think in one of my first comments to you i told you about our sock situation. i hope you put that post back up—i need to read the comments. maybe you’ll strike up an entire community of people with T1D + additional acronym.
and someone will suggest OMNIPOD and i’m curious what you’ll say back!
Ugh, yes, it is down. I was asked to submit a guest blog and when I did, it immediately posted to the blog, so I thought it was up and running. But, my post is in pending status so it’s not officially published yet. I will repost the link when the post is approved. I am beginning to see OCD like tendencies in Maddy as well. I’m really not sure if that is what it is though, or just her getting even more rigid due to her sensory issues, which ARE getting worse. Omnipod… yes that was the first pump I considered due to tubeless format. But, we got a sample one and it is just too big… it bulged out and she did not like how her shirt sleeve or pants had to stretch to accommodate that. Again, the sensory thing. Tubing has actually not been as bad as I thought it would be for her… but she refuses to wear a site on her arm because she does not want the tube running down her arm tickling.
I think you might be in New England. Do you know Carolyn Dalgliesh? I don’t know her, but we write for the same website (it’s for Rhode Islanders) and I think her work sounds really interesting.
http://www.systemsforsensorykids.com/
She wrote this post, and it changed my feelings about summer, or at least my feeling of self-hatred for dreading summer so much.
http://kidoinfo.com/ri/simple-summer-strategies-for-sensory-kids/
No I don’t know her, but thank you for sharing these links!
And yep I am in New Hampshire.
Hi, could I write you an email?
Sure. My address is hmqueen@gsinet.net.